Description
As the primary caregiver for a child affected by CAH, one of the most difficult transitions can be handling over that care to others while your child attends school or camp. There are medications to keep track of, signs and symptoms of illness to look for, and the need for appropriate and immediate action in case of emergency.
The Getting Ready for School/Camp packet assists you in building a strong team of family, friends, health care providers, teachers and others to ensure the health and safety of your child CAH while at school or camp.
This downloadable version includes:
- Getting Ready for School/Camp Parents Tips
- Medical Information – Sample Letter (aka doctor’s note)
- Medical Supply Kit Checklist
- What is a 504 Plan and How Can it Help m Child?
- 504 Accommodation Plan Request – Sample Letter
- Health Plan Worksheet
- About my Child – Sample Letter
Two additional documents* that may help you in this process but only available in the printed version of this packet:
- CAH Due to 21-Hydroxylase Deficiency: A Guide for Affected Individuals and their Families*
- CARES Foundation Emergency Instructions brochure*
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